I hope this gives people living with chronic pain permission to admit that the emotional load can become just as exhausting as the physical pain. Sometimes, it takes a stranger to remind us just how heavy the weight we’ve been carrying really is. Have you ever had one of those moments when a stranger says… Continue reading Living with Chronic Pelvic Pain: When You’ve Been Strong for Too Long and a stranger just drops into your life for a moment and you feel heard?
Finding the Positives When You Live With Endometriosis and Pudendal Neuralgia
Let’s be honest. There is nothing inherently positive about living with endometriosis or pudendal neuralgia. The pain is real. The exhaustion is real. The frustration is real. The appointments, procedures, medications, investigations, setbacks and uncertainty are real. But something I’ve discovered through living with chronic pelvic pain is that the experience can change you in… Continue reading Finding the Positives When You Live With Endometriosis and Pudendal Neuralgia
There are genuinely things chronic illness can teach or strengthen in you.
There are genuinely things chronic illness can teach or strengthen not because suffering is good, but because you’ve had to develop things you might never otherwise have had to develop. I claim all my power back to me 🧡 You can become more: Present - noticing tiny moments that would once have passed you by.… Continue reading There are genuinely things chronic illness can teach or strengthen in you.
I Don’t Need a Normal Life. I Want a Full One.
For a long time, I think I measured my life against what I thought a “normal” life was supposed to look like. Being able to make plans without thinking about pain. Going out without wondering how long I would be able to sit. Having a busy day and simply getting on with it. Moving my… Continue reading I Don’t Need a Normal Life. I Want a Full One.
I Want to Live With Intensity
I don’t want to simply survive my life. I want to feel it. I want to live with intensity. I want to laugh until my stomach hurts, dance in the kitchen, make things with my hands, listen to music loudly, love deeply, create beautiful things, sit under the stars, travel, kiss my person, watch my… Continue reading I Want to Live With Intensity
When Doctors Stop Hearing You with Chronic Pain and Endometriosis
There’s a point in living with chronic pain, endometriosis, pudendal nerve damage and myofascial pelvic pain where something just shifts with it all Not in you. In the way you’re treated. The appointments become shorter. The questions become fewer. You find yourself repeating the same story over and over, hoping for a new direction and… Continue reading When Doctors Stop Hearing You with Chronic Pain and Endometriosis
I Just Had My Pudendal Nerve Myofascial Trigger Point Injection Procedure
Today Im fresh out of the office of my amazing private gynaecologist after getting my pudendal nerve and inflammatory myofascial trigger point nodules injected. This experience has had a profound effect on my body, my emotions, and my mentality. Today was not just another appointment. It was another chapter in a long and painful journey… Continue reading I Just Had My Pudendal Nerve Myofascial Trigger Point Injection Procedure
Feeling Oppressed by Chronic Pelvic Pain and society’s expectations.
There are days when chronic pelvic pain doesn’t just hurt me it oppresses me how doctors make me feel they oppress me (note - theres a genuine human woman in there trying to get out express herself with a confidence rocked by a feeling your not believed, family and friends can oppress me by not… Continue reading Feeling Oppressed by Chronic Pelvic Pain and society’s expectations.
I Finally Got the Green Light for Endometriosis Surgery After Being Dismissed the first time.
My Journey to Excision for Pelvic, Bladder and Bowel Endometriosis My body my rules 🩵 After being dismissed, gaslit, and made to question my own pain in an appointment I waited eight months for, for severe chronic pelvic pain (Endometriosis), I finally got the green light for laparoscopic excision/ablation surgery for pelvic, bladder, and bowel… Continue reading I Finally Got the Green Light for Endometriosis Surgery After Being Dismissed the first time.
